Sunday, September 23, 2018

PAIN-Shingles and beyond

I haven't blogged in over 2 years, but I would like to start again. This time while also documenting things going on with my family, I'm going to talk pain.

Hopefully this will help me deal as well as give others hope that they aren't alone.

March of 2015 I went to dinner, while at dinner I got a bad pain in my side. The pain increased as the night went on and I ended up in the ER. They thought my appendix was acting up but all tests came back fine so they sent me home.
Monday I went to the doctor pain was still horrible, she thought the same thing that it was my appendix and sent me back to the hospital. Again all test came back fine.
Wednesday I went back to the doctor that time I had about 10 spots running along the line that hurt. I was diagnosed with Shingles and sent home with medicine to help them go away.
The spots went away, however the pain never did. In fact the pain got worse.
I have tried every treatment, and theory to help lesson the pain. I tried chiropractor, toothpaste, fish oil, medicine, stretching and so so much more.
After about a year I went to a pain management doctor. He tried killing the nerve. I was the small percentage that instead of killing it, the nerve sensitivity was heightened. The doctor told me if I didn't want to go more invasive than that there was nothing he could do for me and dismissed me.
  After three years of pain and the crack down of opiods I went back to another pain management doctor. He tried an epidural. It didn't help. So he suggested a spinal cord stimulator.
   Since May I have been working on trying to get the stimulator. I had to have an MRI, see a physiologist, and try another medication. I went through all the steps, then my doctor changed names of clinic and had to get new insurance approval. That happened, we scheduled my surgery, then insurance came and denied it.
That is where we are right now. The doctor is fighting the insurance, however right now all I can do is wait and pray that the insurance changes their mind. 
So my blog will be about the daily battles I deal with to over come the pain.
I own my own business, I have two active children and an amazing husband.

When I wake up in the morning that is my first clue of how the day is going to go. If I wake up and the first thought in my head is WOW my side hurts, I know it is going to be a hard long day.

Today was one of those days. The second I opened my eyes the pain hit me like a ton of bricks. It was throbbing and shooting pain. I got in the shower and even the water of the shower hurt my side. I put on my loosest clothes and got ready for church.
  In church I always try to put a smile on my face, when people ask how I am I always say fine, it is too hard to describe the pain, also someone my age isn't supposed to be in that much pain. Today I did ask for prayers that insurance might change their mind.
After church I was supposed to go to the store to pick up items my business needed for the week. As I was driving the idea of lifting the items just made the pain even worse, so instead of going to the store I came home. I laid down on the couch. I knew I didn't have much time and I should get the store done yet I couldn't move. I laid there for 2 hours.
At that point I had to force myself up because both children are in scouts and today was Scout day at the local Corn Maze and we had to meet their troops there.
 Because the pain goes from my lower back and wraps around my side, pants are hard to wear so I wear lots of dresses and skirts.  This means I am walking through a corn maze with a dress on.
After 2 hours of the maze it was time to go to Girl Scout meeting, during the meeting all I could think about is going home and laying down.
As soon as I got home I went straight for my pain pills and ice pack. These are the only two things that help. The pain pills do nothing for the pain since the pain is nerve related and not muscle. However the pain pills help relax the tight muscles around the nerve and help my brain relax enough that I will be able to get a little sleep tonight.
  I will go to bed with an ice pack and hope when I wake up tomorrow my first thought isn't about pain. 

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