Tuesday, July 8, 2014

4th of July Weekend

The 4th fell on a Friday this year which made for a nice three day weekend!
On Thursday night we met Chris parents for dinner and then went to the fireworks in Alton, who likes to do everything a night early.
  On Friday we got up and went to Grafton to do a hiking trail. We took the stroller because we wanted to do a longer hike. Well we got to the trail and realized that the stroller wouldn't work. So the we told the kids that they were going to have to walk but we would turn around when they got tired. With a little encouragement the kids walked 3.1 miles in an hour and a half. It was so nice to know that they could do it and it was a lot of fun.
   We then did somethings around the house and then headed to the park by our house for a festival. The kids did a bounce house, bounce slide, and cow train. Alyssa did a trampoline, and tattoos as well.
   After that we came home and ate some dinner, did the chocolate fountain and watched fireworks with friends from the back deck.
   The next morning both kids slept until 8 am. So we got up and went to the farmers market. We took the kids bikes with us and after the market we rode our bikes along the river trail. Once again Chris and I walked 3 miles while the kids rode their bikes.
   We came home and ate lunch then went swimming. We went to the community college pool so it wasn't crowded at all as you have to be enrolled to use it.  The kids loved swimming and it was nice not to worry about keeping track of them or spending a lot of money for two hours of time.
    After swimming we came home, ate dinner and then went out for ice cream.
   On Sunday the kids and I went outlet mall shopping with friends and Chris enjoyed some time for himself.
  It was a great weekend by all and just what we needed as a family.

Tuesday, June 24, 2014

Grandma in Town

For the last three weeks my mom has been in town. The first week she was here with us. The kids got up to go to daycare with me every morning but my mom picked them up after nap. They loved that. Each day the kids got one day with my mom with just them. She took Alyssa to get her nails done. The day with Colin I can't remember what they did but both kids really enjoyed their time one on one.
  Then my mom went down to my Grandpa's house for a week. During that week the kids had vacation bible school. Alyssa loved it and really got into it. Colin was on the very young side for it but did still seem to enjoy it he just didn't get as much out of it.
   That weekend we went to the lake. We had fun but it was raining all day Sunday so we left the lake early and met up with my mom and Grandpa in Kingdom City for lunch. My grandpa loves my kids. The whole lunch time he spent smiling at my kids and telling them how good looking they were.
   My mom came back to St. Louis the next day and this time she had the kids stay home with her in the morning and she brought them over a little later in the morning. On Tuesday they both skipped daycare and went to a movie, lunch and the children's museum with her. They thought that was awesome.
   On Tuesday night we found out Duane needed to have surgery to repair the retina on his eye. So I told my mom I would drive to Arizona with her as long as she helped with the plane ticket home.
   So Friday at 11:30 we left St. Louis. We arrived in Phoenix at 5:22 on Saturday. It was nice to have that time with my mom to talk and enjoy each others company.
   On Saturday night I went out with Michael and we also got together Sunday morning for breakfast. I drove a corvette and then got on a plane at noon on Sunday to get back home.
   So that is the fast version of the last three weeks.
   Now we are just getting back into a routine and enjoying the nice weather the last few days.

Monday, May 26, 2014

Weekend at the Lake

We were able to leave around 1:30 for the lake. That was really nice because we were able to get out of St. Louis before the rush of traffic.
  It was a perfect day weather wise and we even had time for a short boat ride on Friday night.
  Saturday morning it started to rain at 7:10 am and didn't stop raining until almost 4 pm. So after waiting about two hours at the cabin for the rain to stop we decided to go into Osage. We went to Miner Mikes and enjoyed play in their mazes and on the rides.

   We then did a little shopping at the outlet mall and headed back to the cabin about 3:45.  Soon after we got back to the cabin it stopped raining so we were able to get the boat out and go to Jolly Roger for dinner.  The kids love that place and because of the rain it really wasn't too crowded so we were able to sit at the table and watch the kids play for a long time. The pirate came around with the bird and both Chris and Alyssa got to hold the bird.
   Sunday the weather was perfect and we spent the whole day on the water, either in the boat, playing in the water (though it was really cold!), on the water mat or other water toys, or just hanging on the dock.
  Chris cooked chicken and steak on the BBQ that night and we then had s'mores for dessert. After dinner we went for a boat ride and while on the boat Alyssa fell asleep.
   Monday the weather was nice in the morning and we went for a nice long boat ride. Both kids took a turn driving the boat by themselves. We were in our cove with no other boats and they enjoyed steering the wheel.
 This time it was Colin's turn to fall asleep.  However soon after we got back the clouds started to roll in and the wind started to pick up so by noon we were packed up and ready to head home.
   It was a really good weekend and can't wait to return in a few weeks when the water is just a little bit warmer!









Tuesday, May 20, 2014

Dance Recital

Alyssa had another dance recital tonight. This was her third recital. I think she did the best she has ever done. I think her age plus past knowledge helped a lot with that.
  She has enjoyed dance this semester. She did it with two little girls from the daycare. It was on Monday afternoons during nap time. She loved it because it got her out of nap and she got to go with friends.
   Her dancing was adorable. I am so proud of her.
  We will have to see if she wants to do dance in the fall.

Thursday, May 15, 2014

10 years!

10 years ago today I married my best friend. In the past ten years our lives have changed more than I could have ever imagined.
When we got married I figured by 10 years we would own a house in AZ or MO, have a few kids, I would be teaching and Chris would be set in a career.
  Well we do have a house but it is in IL, we do have a few kids, and Chris does have a career, but it is still so different from what I imagined.
   I have my own business that will be celebrating 4 years of being my own boss in August. Our two kids are my whole world and would do anything for them. Chris is working at a great company, but in doing so has had to be out of town at times.
   The other thing I never thought was how my love would grow for Chris. When get got married I knew I loved him and wanted to spend the rest of my life with him, however that love as corny as it sounds has only grown.
  The first time he held Alyssa my love for him tripled. Then less than two years later he held Colin and my love grew even deeper. Watching him play with the children is one of my favorite things to do.
   Those are just two of the big examples of how my love has grown there are so many little things that I can pin point and even more that I can't.
   I am a very lucky girl to have such a wonderful partner to spend my life with and raise our family together.

It is been a fun, crazy ride these past 10 years and I can't wait to see what the next 10 hold for us.

Monday, May 12, 2014

Swim

The kids have been in swim for years now (and no I'm not exaggerating). Alyssa started swim when she was 8 months old. Colin started when he was 6 months old.
   Right before Colin turned 3 he started to swim with the teachers instead of us. For about 5 months at every lesson Chris and I would sit on the benches watching the kids swim. Colin would always make us so nervous. We called what he did controlled drowning. It was nerve wrecking to watch.
   Starting middle of March I decided we would do two sessions of two nights a week to see if that could help Colin.  The first session went okay, he did improve but nothing drastic. Then the second session hit.
  It was like a light bulb went off for him! He started diving off the edge and diving board on his own (on his knees). He started to swim the length of the pool instead of the width. And by the last week of class he was actually swimming all the way across the pool on his own on his back.  At that point I realized I couldn't stop swim classes for the summer like I had planned.
   So they are back in two days a week for another 4 weeks. I'm so proud of Colin and how he has just taken off with his new found determination and drive.
     
    Alyssa is also doing fantastic. Her back stroke is amazing. She flies across the pool. Also her dives are so pretty and she has started to dive deep.  She enjoys going to the bottom for rings.  Her front crawl could still use some work, but even her swimming and her endurance has grown tremendously the last 8 weeks.

The Weekend

Saturday was Chris' birthday.
We got up and I fixed a stuffed french toast and we put candles in it and sang happy birthday.
We then decided we wanted to do something fun and the weather looked nice so we packed a picnic lunch and headed out.
   We started with a trip to Forest Park where we rented a paddle boat for an hour. We had done this once before and Alyssa remembered so she was super excited. Both kids took a turn paddling. Colin loved it and was mad when we made him stop.
   After that we got our lunch out and sat by a creek to eat. The kids then spent some time playing on the rocks. At one point Colin got scared and Alyssa went back got Colin's hand and helped him get across.
   We then went to the zoo. We only had about two hours before we had to leave so each person got to pick one animal to see. Colin picked the elephants, Alyssa picked the butterflies, I picked the monkeys, and Chris picked the seals. After a long train ride wait and a very short train trip we piled back in the car to head to Chris' families house for a Mother day/ birthday celebration.
    We enjoyed lots of good food and talking. Then there was a fair going on at a school very close to where we were at and was open to the public so the all the kids and Chris and I walked to it. The kids enjoyed rides for about an hour and a half and then we walked back to the family house and enjoyed another hour of talking. Chris wanted a carrot cake. So I fixed one for him. I was very nervous about how it would turn out but it ended up being a really good cake.
   We didn't leave until 9:00 that night.  Surprisingly the kids stayed awake the whole trip home so once home we did a quick shower and off to bed.
   The storms hit about 11. The wind was blowing the front of the house and so Alyssa joined us in bed. She was very nervous about the storm and kept asking me if we could go to the basement and curled into my back with her head buried.
   Luckily the storms didn't last long and by 1 everyone was sleeping nicely again.
   At 3 Colin came into the room gasping for air. So downstairs we came for 3 breathing treatments back to back. I was able to get his O2 back up to 98% and so we went back to bed for awhile.
    On Sunday (Mother's Day) everyone slept until 7:40. Then the kids got up with Chris and let me sleep in.  Chris and Colin went and got me flowers.
   We got up and Colin was super grouchy. So we spent the day just lounging around the house. In fact I left long enough to pick up lunch, but other than that we watched movies and played. It was a good day.

It was a fun weekend, and now ready for our busy week.

Sunday, May 4, 2014

Birthday Weekend x2

A few weeks before my 30th birthday I decided I wanted to get a tattoo. I wasn't sure of what or when but I wanted one. I guess I could call it a small mid life crisis.

On Friday night Chris arranged for a few good friends to meet at melting Pot for dinner. We had dinner reservations for 8 but were able to drop the kids off with Grandma and Grandpa at 6:30 so we drove to the restaurant and  grabbed two drinks before we met up with everyone.
We then had a great dinner with good food, great conversation and lots of laughter. We were there until almost midnight. Chris and I had planned to go out after the dinner but since the dinner went so long we came home and went to bed.

On Saturday morning Chris and I slept in late and then went out to breakfast just the two of us. We then came home and hung out until the kids got home at noon. We then ran some errands.

I then went out with a friend for a few hours and then decided it was time to go get the tattoo. I went to a place here in Alton. The lady did a great job.

The tattoo is a heart with heartbeats coming out either side of it. I had it designed as my heart with the kids heartbeats coming out of it. I went back and forth between my foot and shoulder but decided on shoulder since then it will never be seen at work.

I am very happy with how it turned out.



Sunday, April 27, 2014

Bowling

Today we started the day off with church and then came home for a quick lunch before setting out on our adventure for the day.
 We went bowling and of course I didn't get a single picture. This was the first time the 4 of us had ever gone together. I took the kids with Jenni a few months ago.
   I love how bowling is now kid friendly. They have these things that look like walkers with a hill attached to them for the kids to roll the ball down and make it down the lane. They also have bumpers that go up and down so that adults and kids can play on the same lane.
   We paid for an hour of bowling which got us a game and a half. It was perfect because by the end the kids were getting tired. Chris beat me by only 6 points which is a huge deal for me. I'm usually really bad but today I played a really good game.
    After bowling we went to an ice cream place we hadn't been to in year and enjoyed some ice cream. We then went to Target to let the kids spend their gift cards from their Grandparents for Easter. Alyssa was very serious about it and spent a long time asking prices and figuring out if she got this she can't have that or if she got that she could pick out something else. She finally settled on a Barbie and some Barbie clothes. Colin got a monster truck, a small car and a book.
   We then came home and I started dinner and the kids played on their own for about 2 hours until dinner was ready.  It was a really good day as a family. We enjoyed things outside the home and in, it wasn't rushed and everyone was in a good mood for the most part.

I really enjoy family days like that!

Alyssa

This morning I was getting ready for church and Chris was in the shower. I came downstairs and Alyssa said mom I need help getting this string off my finger.
  I looked at her finger and she had the thinnest string ever wrapped around her pointer finger MANY times and super tight. It was so tight the tip of her finger was already dark purple. I tried to find a point to start unwrapping but couldn't find an end. I tried for about 15 seconds while watching her finger turn many more colors before I told her we needed to go get Daddy. I ran and got a knife thinking I could slice the string and followed up the stairs.
   Chris told me no to the knife but to grab scissors. I got them he told me to cut but I cut the wrong part making it even harder to get it undone. 3 or 4 times he would make a noise or grunt making me think he wasn't getting it off. I couldn't see the string anymore all I could see is her finger getting purple and swelling quickly. I started to grab her arm and told Chris I was taking her to the hospital but he told me to stop and calm down.
  About 30 of the longest seconds ever he said there I think I got it all. I grabbed her finger and she cried but I couldn't see any more string.
   Alyssa and I came back downstairs and she climbed right into my lap and was asking questions about why her finger still hurt and why it was changing colors. I explained that the blood couldn't move through her finger and so it made it turn purple. She seemed to understand. Hopefully she won't wrap anything else around her fingers.
   I'm so grateful that Chris was able to remain calm and get the string off because I don't think I could have.

Tuesday, April 22, 2014

So tired

I have now closed the daycare for 4 days in a row. I used to open every day, luckily about a month ago we changed it and now I go in at 7:30 versus 6:30. But still working until 6:30 a night is so draining. I feel like I have no time at home and no patience for my kids.  Thank God Chris hasn't left yet and he has taken over the kids for me for the last few nights.
I am so grateful for my own business but it is times like this that remind me that for every good thing there is with owning a business there are also sucky parts.

My staff has pulled together wonderfully and I haven't heard any complaints, kids are still well taken care of. I am proud of my staff and know that we picked some good people to work for us.

Now I just need a drink and to put my feet up.

Sunday, April 20, 2014

Happy Easter!

It was a beautiful day here! We got up, the kids came downstairs and looked through their Easter baskets, then went searching for eggs.

When then let them play a bit, and then got ready for church. Since it was Easter Sunday there were a lot more people at church and as I looked around at all the little kids I told Chris I would really like to keep the kids with us versus sending them to the nursery. I said this for two reasons, one I knew that one of the regular ladies was out and usually that means if they need help I have to stay and I wanted to hear the sermon, and two because Colin has been relatively healthy lately and I really didn't want him exposed to more germs than he had to.   The kids did great. During children's time the pastor turned on music and encouraged the kids and other people to dance. Colin stood up and started to cry. I had to go up and rescue him. He just kept saying "I don't want to dance". Alyssa stayed up there and danced and when the music stopped and the kids sat back down Colin went back to join them.
They did really well for the rest of the service. Colin got a little restless towards the end but still he was really good.
  We then walked home from church (we walked there as well). We had a snack and then left to pick up food and head to Judy and Chas house. We had a nice sit down family dinner and then the kids got to search for more eggs. This year it was only Alyssa and Colin searching for eggs. They had about 100 eggs to find. They had a blast but got WAY too much candy and money.
   After that we had some cake to celebrate Becca's birthday and mine.

I love that the kids get along so well with their cousins. It is nice that they can all go off and play while the adults sit around and talk. They are building the relationships I dreamed about before they were even born.

We then came home and went for a walk as a family. It was then time for a short tv program, baths and bed.

It was a really good Easter and we really enjoyed the weather and each other's company.






Friday, April 18, 2014

My Birthday

Today is my birthday. It was a good day.

It started with Alyssa crawling into bed with me and wishing me a Happy Birthday. She then told me all about the present I was going to get after dinner and then asked for doughnuts ( because that is what we do for the kids birthdays).

I then came downstairs to Colin who also asked if it was my birthday and I told him yes, to which he responded he couldn't wish me a Happy Birthday until dinner time. There were also flowers on the counter for me and trash was at the curb. (Both nice surprises)

I got off work at 10, I ran some errands and then Chris came home early and we went out for lunch.

I had to return to work at 2, and when I came home at 6:40 dinner and a drink were waiting for me on the table.

I enjoyed dinner of chicken, macaroni salad, and broccoli. With German Chocolate cake for dessert.

The kids and Chris got me a jewelry organizer that I wanted. My dad and step mom got me a coach purse and ear rings that have the moon phases of the day the kids were born. My mom got me pictures for the house that I have wanted.

It was a really good birthday and I love that my kids are getting old enough to understand. They don't know why they made my day so special but really they made it so amazing.

I turned 30 today. I got a few texts telling me that I shouldn't worry about this birthday. For all of them I responded I'm really not unhappy with turning 30.
  I have a good career, a successful business, a wonderful husband, two amazing kids and a life I love. I'm not upset at all turning 30. It might of been different if my life was in a different spot, but I'm okay with turning 30 and excited to see what my 30's bring me.

Monday, April 14, 2014

Weekend

We had a really good weekend. The weather was wonderful Thursday-Saturday.

On Friday night once I got off work we went out to dinner and then went to the carnival that comes to town every year. Alyssa remembered it from last year and was so excited to go. We bought 16 tickets and they had used those in about a 30 minute time span. We had to carry Colin out of the carnival crying. We promised to go back on probably Sunday. Unfortunately the weather turned bad on Sunday and we weren't able to go back. We are going to try to go on Wednesday. They went on a pretty fast twirly roller coaster. Colin really liked it, Alyssa said she liked it but Chris said her face wasn't so sure. We also went on the super tall slides that you ride down on a sack.
  The kids also were able to do a fair amount of rides by themselves and they liked that.

On Saturday Chris had other plans so the kids and I, along with a good friend of Colin's and her mom headed off to Eckerts in Bellville to have some Easter fun. We got to hold a baby bunny, a baby chick and pet baby ducks. We got to ride a tractor, search for eggs, get face painted, decorate cookies, see the Easter bunny and plant some seeds. The kids had a blast and enjoyed it. We then went to a late lunch and came home.
Later that evening we went out and got new tennis shoes for the kids and they were also super excited about that.

On Sunday we had some storms that came through so we stayed around the house most of the day, but did go out in the evening for dinner at a good pizza place. The pizza place has the kitchen open so you can see into it. The kids enjoyed watching the guy throw the dough and make the pizzas. The guy enjoyed playing with the kids as well. He was throwing flour at them, then at one point put up plastic against the window so they couldn't see in anymore.
  Alyssa loved the pizza. This is exciting because we have tried pizza from many places and so far we can only get her to eat Little Caesars or Papa Johns. But she ate three pieces of Dewy's pizza last night and another two of it tonight.

It was a good weekend. We are now back into the week and both Chris and I are fighting head colds that seem to be winning right now.














Wednesday, April 9, 2014

Moving

Last Saturday we went and picked up a uhaul truck and loaded it with a bed, a couch and some other odds and ends and set off for Iowa.
 We put one car seat in the uhaul and one car seat in my car. The kid in my car got to watch a movie (first time a movie has ever been played in my car). It ended up taking us about 4 hours with a stop for lunch. The kids did fantastic! Not one complaint and while Alyssa was ready to get out of the car at the end she still did fantastic.
  We got the uhaul unloaded and drove around the town and then headed to our hotel for the night. We were not able to get a hotel in the town Chris is going to be living because they are all full with all the people working on the job. So we started back towards home and got a hotel about an hour away from the new job site.
   We got all settled and went to sleep. At about midnight Colin woke up gasping for air. I had a glass of water sitting by the side of my bed and I grabbed it and walked over to him. He started to throw up so I got him to the bathroom and he threw up some mucus. Even after that he was still gasping. I told Chris I was worried and thought we might need to call 911. We decided I would try taking him outside and see if the cold air would help. So in my pj's I took Colin outside, it did nothing.
   I took him to the front desk and asked how to get to the hospital. She told me that there was one about 3 miles away. So I took Colin back upstairs and put shoes on him and clothes on me. We then headed to the hospital with him gasping the whole time.
   I found the hospital pretty easily and ran him in, by then I was shaking worse than he was. They hooked him up to the O2 monitor right away and his O2 was good (high 90's) but he was wheezing. So they got me back in a room and started a breathing treatment. The doctor came in and looked him over and saw he had a bad ear infection. We did a chest x-ray and it showed pneumonia. So the doctor came back and asked what I wanted to do. We decided to give him another breathing treatment, a shot of antibiotics and a shot of steroids and we would go back to the hotel to sleep and then head for home ASAP the next morning.
  From the time I got in my car at the hotel to the time I got back to the hotel was a total of 2 hours. Gotta love a small county hospital in a small town.
   Alyssa slept through all of it and was shocked when she woke up the next morning to me sleeping with her versus Colin.
   We got home and Colin has been ok since we got back, lots of coughing but is still in a good mood and eating well.
   Chris leaves for good Sunday night or Monday morning. So right now we are just enjoying the last week of normal as we know it before we start a new normal.

Tuesday, April 1, 2014

A year

A year ago tomorrow is when Colin went into the hospital for a PICC line. We really though we would get answers from that.
  Since that PICC line we have had 3 major surgeries and 1 bronchoscopy by itself.
 Here we sit a year later no closer to answers than we were this time last year. It is so discouraging and frustrating. We will get a second opinion from an ENT the end of this month and then see the pulm again in May.  At this point I don't expect answers.
  Colin has been okay health wise. He finished his antibiotic the first week of March and while his nose has been running since the day he stopped the medicine he hasn't been too sick. Hopefully we can get a few more weeks before he is totally run down again.


Also 4 years ago tomorrow was my last day as a classroom teacher. On April 2, 2010 I walked out of school at the end of the day and never went back. In fact I have only stepped foot in that school one more time since that day and it was at a time when there weren't any kids around. While I'm sad I didn't get to finish the year out, I do not regret my decision at all. The last 4 years have been so much better than the 3 years I had as a classroom teacher. I still have a fair amount of stress, and I work longer days than I did as a teacher but my over all attitude is much better.

Wow it is amazing how much your life can change, and stay the same in such a short amount of time.  

Thursday, March 27, 2014

Why I blog

I started this blog in the weeks after I gave birth to Alyssa. The reason I did it was because 1. it was a cool thing to do and 2. I wanted a place to remember the big and little things she was doing. 3. A place for friends and family to keep up with what is going on since they don't live close.
  As time went on I realized I was really bad at keeping up with the baby books (in fact I don't think I have opened either kids in about a year). I haven't done a fantastic job at blogging, but I do have at least parts of each year in writing.
   After my first year of blogging I made all my blog posts into a book with blog2print. I had said I would do that once a year so that my kids could have a book that had memories of their childhood seen from my point of view. Well I haven't done that yet, but I do admit that every so often I spend a night going back looking through old posts.
   Sometimes it is because someone asks me a question about a milestone one of the kids has met and I can remember about when it happened but not exactly, so I go back and read through blogs.
   I never figured I would have a big fan base reading my blog. To my knowledge there are only like 3 people subscribed to my blog, but when I check my stats I see that I do have people from around the world reading my blog.
  If you are one of those can you tell me what inspires you to read my blog? Or was it a pure accident that you came upon my blog?

Thursday, March 20, 2014

How do I do it?

Tonight as I was sitting in at swim class for the kids my phone went off that I had a facebook message. When I checked it, it was someone that said that they had found my blog and wondered how I did it.

This got me thinking. To be perfectly honest some days I'm not sure I am doing it. Sometimes people will asking how I am and I will say well I'm alive. They laugh it off, but honestly some days that is about the only emotion I have.

Other days I feel cool and confident and feel like everything is under control. The response I gave is that I always make sure I'm moving forward. Some days it feels like I'm taking giant leaps, other days I'm taking such small baby steps I wonder if I'm moving backwards.

Between Colin and all his health issues, owning and expanding my business every year for the last three years and making sure my house and husband are all well taken care of is hard.

 I have to admit I haven't always been successful, at times I have had to go to my doctor to ask for help. I am on blood pressure meds and at times anxiety meds. At times that makes me feel like a failure, but in the bigger picture I know that it really doesn't make me a failure but human and it is okay.

The other part that gets me through is God and my family/ friend support system. Without them I know there would be no way I could handle it. When the tears are there and I'm at a low I have found that God always places someone in my life that can help me. That doesn't mean that the day I feel lost I automatically get help but it does come. I have a few people that are always there with an ear to listen or a shoulder to cry on.

My life is not easy, yet as I think about it I don't think I would change it. Are there days when I would love for Colin to be healthy? Well of course! Yet if I had the choice to take Colin with all his issues or another perfectly healthy little boy I would take Colin in a heartbeat.

Because of Colin and all we have gone through I know I have been able to help a few other people when their children have been sick. That helps makes it a little better.

Today as I have sat an analyzed Colin's breathing, moods and O2 I wonder if there will ever be an end. At this point I can't tell you, but I know I will make it. And that is what is important!

Wednesday, March 19, 2014

Colin

Colin, Colin, Colin I so wish there was an easy answer for him! We went back to the doctor (Pulmonary) on Friday. She decided at that time that it isn't his lungs that are the issue, it is his sinuses. I told her that the ENT disagreed with that. So Pulm wanted us to consult another ENT for a second opinion.
In all the discussion she told us to stop doing breathing treatments because they weren't doing anything his lungs sounded fine and clear.
   So we did, we stopped treatments as of Friday afternoon. Well every day since then he has seemed to get a little worse. Today his eyes were droopy, watery and his energy level was very low. I'm no sure where to go or what to do.
  I just wish someone could come up with some kind of answer.

Life

I have started this post a few times and always hit the delete button and move on. However I keep reminding myself that this blog is here so that in 10 years when I want to look back I can remember things that happened.
  About a week and half ago Chris told me that his company had told him he was going to take lead on a job. Now this is a good thing. He had been working the last few months on a new data entry process and the higher ups wanted him to try it out on this new project.
   He then told me that this new project is in Iowa. It is about three and a half hours away. Then went on to tell me that the projected time line is 18 months.

    I am so proud of all that he has accomplished with his job. Every year he gets good reviews and it seems like there are a lot of people that want Chris on their team. I'm so happy that he has been able to find a place to work that values him as an employee. Yet at the same time it SUCKS because now he is going to be gone for 18 months.
  We talked about all moving up to Iowa but with my business, Alyssa starting school in the fall, and all of Colin's health issues it just wasn't the right choice for us.
   We have told family and friends about the move but we haven't told the kids yet. We don't know exactly when he is going but it will be within the next few weeks. I'm trying to prepare myself for long days and a routine that will work for the kids and me.
 I'm not looking forward to him going but I know that we will be okay and that we can get through this and hopefully come out stronger on the other side.

The other big change is I have given up the job of opening the daycare to a qualified employee. I switched hours with her and so she comes in at 6:30 and I don't come in until 7:30. This morning was day three of this routine and I have to say that I am LOVING it. I'm not as rushed and the kids are happier when we walk out the door. It is amazing the things I can get done in the hour. I have unloaded the dishwasher twice, folded laundry and even done some snuggling and book reading. I love it.

Tuesday, February 18, 2014

No answers yet

I haven't posted about Colin in a few weeks. I thought I was doing it because I was waiting for more answers. Tonight I realized I haven't done it because I don't like what I'm hearing.

We had the sleep study: It showed mild sleep apnea both central and obstructive. What that means is his brain forgets to tell him to breathe at night at times. AND also at other times he tries to breathe but can't because something is blocking his airway. At this time they want us to just watch it.

We had a CT scan: That showed classifications and sever chronic infection in his sinuses. That resulted in a 30 day prescription of antibiotics. His chest CT scan showed Mosaic air ways in lower lungs and scaring in upper lungs. The Mosaic means that his bottom lungs aren't getting the air they should be. They aren't sure if they are fully destroyed or just damaged. The scaring at the top is from the constant pneumonia.  At this time the pulmonary doctor isn't sure where to go with this info.

We had a hearing test: It showed normal hearing except for the two highest sounds on right ear. This isn't a huge concern and they felt if he didn't have as much fluid build up in his head he would be okay. Right now just watch and maybe retest in 6 months to a year.

We had an appointment with the ENT: She said start nose spray twice a day to try to help the sinuses. She really didn't want to do surgery. She is hoping he will grow out of everything. (Right now I'm not really happy with our ENT at all and haven't been for about a year. I'm hoping at our next pulm appointment we can find a new ENT that fits the needs of Colin and our team better)

We had a speech eval: She was concerned about how he breathes when trying to eat. She doesn't feel he is aspirating on food. (She watched him eat). But she feel she can't help him at this time. She noted that he can't ever close his mouth and breathe. So to try to do oral exercises to strengthen muscles we would in a way asking him to suffocate himself since he can't breathe unless his mouth is open. So until something is done about his sinuses she can't help him. She feels there are issues but right now can't address them until other things like sinuses and pulmonary function is controlled.

We go back to see the pulmonary doctor in March. I'm hoping she has talked to a few other doctors and has a plan. She has talked about a lung biopsy, and also some other testing. I don't think March appointment will give us any answers but since we haven't come up with any other maybe we can try a few more roads.

For every step forward it feels like 2 backwards.

So that is the update on Colin. He still needs prayers. He needs prayers that the doctors on his team can find a cause or find the correct tests to run on him to get the answers. After 3 years of praying for this I feel defeated and at times really down. I do thank God that he is a trooper through it all. I will continue to fight and do what I feel is best for him until either we find an answer or he is old enough to tell me what he wants on his own.
  

Friday, February 14, 2014

5 year stats

I always enjoy looking back and seeing how much the kids weighed and how tall they were on each of their birthdays.
Yesterday Alyssa went for her 5 year check and did fantastic! She got three shots without a cry, scream or fight.
She was 46.25 lbs and 44.25 inches tall.

Arizona Vacation

We had our first true, out of the state vacation as a family of 4 in three years this past weekend. It was a wonderful vacation and the kids did fantastic!

It all started when the girls basketball team that I helped manage in high school was being inducted into the hall of fame in Chandler. I decided I wanted to attend. So then we decided to add a few extra days on and enjoy some warm Arizona sun.
We landed on Saturday and my mom picked me up from the airport and we headed to the induction while the kids got the luggage and made a stop at McDonalds.  Afterwards we met back up and went to see a few of my friends from when I lived in AZ.
 On Sunday we went to the Renaissance festival. The kids had a blast and Alyssa got a mermaid painted on her arm.
On Monday we went to an indoor play area and a see turtle aquarium.
On Tuesday it was the Wildlife zoo and aquarium.
On Wednesday we got an a plane and came back home to the cold.

Everyday we went from early morning to about 8:30 pm every night non-stop the kids got a few little cat naps in the car from one place to the other, but nothing big. And they did fantastic!! We had two very very small meltdowns from each kid but nothing big or that lasted very long. They were well behaved and seemed to really enjoy everything we did.
A few times throughout the trip Alyssa would lean over to me and say "Thank you for bringing me here". Since we have been home Alyssa has talked about going back every day.
I love watching the kids interact with my mom and step dad and brother. Since they don't get to see them often I always wonder in they will remember them, but each time it takes less and less time to warm up. Most of the time the kids wanted to hold Michael Michaels hand or Grandma's hand.
Even on the flights the kids did a good job. They are long flights and the kids sat still and didn't cause any issues on the flight.
I can't wait to have more vacations and enjoy them as our kids get older and enjoy more.

Thursday, February 6, 2014

Dear Alyssa (5 year old)

Dear Alyssa,
   Today is your 5th birthday! Where has the time gone? I love the little girl you have turned into. You are smart, stubborn, funny and passionate little girl. You weigh about 45-48 lbs and are about 45 inches tall( I think you go to the doctor next week) You wear anywhere from size 4t to 6 depending on what it is and if it runs big or small. Most of your clothes are 5s. Your favorite thing to wear is dresses, but have started to add your own layers. Most days your clothes don't match but you love your outfit selections and are proud of what you pick out.
     You are in the preschool class at daycare. You have started to learn some sight words, and get very excited when you see one of those words in print. You can't wait to start kindergarten.
    You have become a picky eater and there are many meals that we cook that you refuse to eat, but your absolute favorite meal in b-bque chicken. You also enjoy all breakfast foods, corn dogs, fish sticks and roman noodles. You dislike mac and cheese and chicken nuggets (unless they are from McDonalds).
   You are the best big sister anyone could ask for. You love your little brother and care about him. At daycare you don't let anyone pick on him except for you.
   You have started not to like to get up in the morning for daycare, but have no problem popping out of bed on the weekends. On the weekends you get up somewhere about 6:30am. On week days when I try to wake you up about 6, you act like it is the end of the world.
    You are still in a car seat but we have started booster training and you love to ride in Daddy's car because he has the booster seat.
   I love to have conversations with you. You have so many ideas and opinions on how things should work.
There is so much about you I don't even think I could write it all down in one blog.
   I love you to the moon and back. I'm excited to see where this year takes you and to see you turn into a kid versus a toddler/preschooler.
Happy birthday big girl! Please stop growing so fast.

Love,
Mommy

5 year old Interview

What is your favorite color? Purple, Pink and Silver

 What is your favorite toy? Two Barbie houses

What is your favorite fruit? Oranges

What is your favorite tv show? Ariel

 What is your favorite thing to eat for lunch? Fish sticks

 What is your favorite outfit? My Ariel dress up


 What is your favorite game? Hide and seek

 What is your favorite snack? cookies

 What is your favorite animal? Hippo

 What is your favorite song? Frozen "Let it Go"

 What is your favorite book? Bernstein Bears

 Who is your best friend? Madelyn and Lizzie

 What is your favorite cereal? Frosted Flakes

 What is your favorite thing to do outside? Play in the snow

 What is your favorite drink? Water

 What is your favorite holiday?  Christmas

 What do you like to take to bed with you at night? My bear and my blankie

 What is your favorite thing to eat for breakfast?  Frosted Mini wheats

 What do you want for dinner on your birthday?  Pizza and chips

 What do you want to be when you grow up?  I want to be a cooker

Friday, January 31, 2014

Almost 5!

Alyssa is 5 days away from turning 5! Where has the time gone?! She is becoming such a big girl. The other night we were sitting down to read books before bed and I looked at both my kids and thought, "How in the world do I have kids this big?!" Sometimes it seems so unreal that I can actually have an almost 5 year old.
I truly can't imagine my life without her.
I love that I can have a conversation with her, and she has so much knowledge. A few nights ago at the dinner table she was informing us about what a habitat is and how she was going to build one.
She also comes up with some of the best stories. Right now she has a story every day about something that happened at school or with her friends. Her stories always have lots of detail and exaggerated details.

She knows when I'm sad and will be the first one to come and snuggle with me. Last night I asked her if I could have some snuggles and she said "yes but only for a few minutes because I have to go play". She makes sure I get a kiss in the morning and at night before bed.

She also loves her brother with a passion. Tonight in the car we were driving home and this is the conversation that happened:
We passed a church that had the lights on the steps on
Alyssa: The place to get married has its lights on
Me: Yep, it looks really pretty.
Alyssa: I'm going to get married there. Is that where you got married mom?
Me: No, I got married at the Lake
A: Did you have to take a boat there?
Me: No we drove a car
A: A car with all your wedding stuff in it?
Me: Yes
A: Like your wedding dress?
Me: Yes
A: And your flowers?
Me: Yes
A: Mommy, when I get married can I borrow your wedding dress?
Me: I would love to let you borrow my dress or part of my dress, but we will talk about that when it gets closer.
A: I want the whole dress, do you know where it is?
Me: Yes it is down in the basement
A: Where in the basement?
Me: On the shelves
A: Where is that?
Me: In the basement on the shelves.
A: OK, you can show me. I was going to marry William, but then Colin got mad and said I was his "Issa" and so I told William I can't marry him because Colin loves me. Hey, Colin do you love me?
Colin: Yep!
A: So now I have to marry Colin because he loves me. Hey Colin do you love me even when I fart?
Colin: Yes
A: Okay good cause I fart now and will fart when I'm a grown up.

And that was the end of the conversation. Probably only because it was time to get out of the car.

My baby girl is growing up and while right now I know when she talks about getting married I know she really has no idea what it is all about and I have plenty of time, but I also know how I thought I had plenty of time before she started school, and now we are only 6 months away!

Wow, just wow!

Answers Coming?

Colin was referred to a new pulmonologist in early January.  After waiting for almost a week to hear from them I called the office and made an appointment, it was set for April 4. I was frustrated with the long wait, but figured there wasn't much I could do.
We went for a swallow study on Jan 17 and his swallow was "perfect" so they suggested I call the referring doctor and see if he could pull some strings to move the appointment up. I called and they told me there wasn't much that they could do but put me on the cancellation list.
   The following Wednesday I got a call asking if I could come in that Friday for an appointment. I said yes! So on Friday Jan 24 we met with the new doctor. I really liked her and even though she walked into the appointment about 15 minutes late, she came in with print outs from Colin's history and took over a page of notes while talking to us.
  She asked a lot of questions and wants to do some more tests to rule out/in a few more things. So we left with 3 more tests to schedule and she wanted a follow up in 4-6 weeks. I told her that was fine but I highly doubted we would get all the testing done in 4-6 weeks.
   So on Tuesday I started calling to set up the testing. We got the CT scan scheduled for Tuesday Feb. 4. The sleep study when I called the first available was April 2. I said I would take it but to once again put us on the list for cancellations. The next day I got a call and asked if we could come in that night. So we already have the sleep study done.
   The last test she wanted was another swallow study, but after talking to the therapy department they said that insurance won't cover another test at this time. So with the help of the parish nurse at our church I found a speech pathologist that specializes in swallowing. I have an appointment with her on Feb 14.
   We then have our follow up with the pulmonary doctor on March 14. After almost 3 years of questions and no answers, I'm really hoping that maybe some of these new tests and people will be able to see something that someone else has missed and we can finally start helping Colin.
   Colin also has a hearing test and sees the ENT on Feb 5. I'm guessing she is going to want another bronchoscopy because he has been so sick since Dec 20. I guess it will all depend on the results of the CT scan and what the hearing test and his lungs sound like next week.
 

Friday, January 10, 2014

Colin's Appointment

Today we went to meet with Colin's doctor. We have seen this doctor since Colin was about 7 months old. He works closely with the pulmonology department and he treats many asthma patients a day, but he his title is really an immunologist and allergist. So at our appointment today I went in with a list of questions. I don't feel that Colin is any better since he repair surgery.
So during the appointment while asking my questions he tells us he thinks we should see a true pulmonologist.
Also asking questions about his swallow, he agrees seeing a speech would be a good idea.
So really the big point of the appointment was that we need to see two other doctors.

At times I really think we are starting to figure out Colin's issues and other times I feel like we are just driving in circles.

As we were leaving the hospital Colin said "Mommy we didn't go to the doctor room" When I asked him what he was talking about he said, "The place that you put on shoes, and mask and blue shirt.." He was talking about the OR room for his procedures.
That made me sad that he is starting to remember and worry about those things. As a barely three year old it isn't fair.

Next week we go for a swallow study. While I don't want anything to be wrong there is a big big part of me that wants something to show up with the results so we have a SOMETHING to go off of going forward.

Tuesday, January 7, 2014

New Years Resolution

One of my new years resolutions was to start leaving work earlier and spending some more time at home with my kids.
Now granted I have only worked two days since the new year, but both those days I left about 4. It has been really nice to be at home and getting to enjoy the kids for a little bit before we have to start dinner and all the other things that the night holds.
  I already feel more relaxed and less stress. It also helps to know we don't have state breathing down our neck every month. We have proven with 7 state visits that we are following the rules and I feel confident in how we are running the center.
This is a good feeling and one I haven't had in a long time. I hope I can continue it.

Tonight Alyssa was so cuddly and kept coming up to me and giving me a hug or a kiss and telling me she loved me. I think that having a little more time at home is good for her too.

Monday, January 6, 2014

Xbox 360

Chris has had an xbox for ever. Before kids he used to play it all the time. Then we had kids and he rarely played it. We got the kinect and we played with it for awhile then it started to collect dust again.
For Christmas Chris got a new racing game. On Saturday he got it out and started to play it. Colin got really involved and watched him. I suggested the Chris give him the other remote that doesn't have a battery in it and let him "play"
So every day since Saturday Colin and Chris have sat on the couch playing this game. Colin pushes the buttons on his remote and Chris does all the real work, but once the race is over they fist bump and cheer. It is really cute to watch.
 I'm sure at some point Colin will figure out that he really isn't playing the game, but until then it is really fun to listen the conversations and interactions between the two.
If Chris leans back, so does Colin, Colin repeats the GPS and encourages Chris to hit signs and other things.

Sunday, January 5, 2014

Snow Day

Tomorrow I will have my first official snow day in 4 years! When I was working in the schools I loved snow days. What I loved even more was when they called it the night before and then I knew I could sleep in the next morning.
Once I quit teaching snow days were a thing of the past. Now I own a center and I had to make the call to stay open or close tomorrow. After weighing the pros and cons and talking to a fair amount of the parents in the daycare, and talking to my co owner we decided to close.
I am looking forward to a day at home with no responsibilities,  ohh wait, I have two young kids who will still need to be entertained all day tomorrow and it will be up to -30 outside so going outside to play in the snow will be out of the question.
Still looking forward to a day off. Hopefully by the end of tomorrow I won't be sick anymore and work on Tuesday will be good.

Friday, January 3, 2014

Hello Flu, Goodbye Flu

I'm 99% sure I have the flu. I have had a fever of up to 102 for the last three days, chills, body aches, super tight chest and throat on fire. Today my nose has started running.
I got the flu last year too. Last year it only lasted about 36 hours and I was just achy and feverish. This year it has hit me super hard. Probably because of the c diff I'm still recovering from. The c diff knocked everything good out of my body and my body is at an all time low. So catching the flu seemed like a good idea obviously. Well it has plagued me for 3 days now so it needs to GO AWAY.

I am SO SO SO SO grateful for Chris. I don't know what I would of done without him for the last three weeks. He has taken over so much of the care for the kids so I can work on getting myself back to normal. The kids have also been fantastic. Today I was so sick, but they came home with me and got themselves a snack, some toys and I turned on the TV and they played quietly, watching tv for two hours until Chris got home. Alyssa really tries to take care of me. She is good at refilling my water and bringing me things that I need. Colin will snuggle with me "to make me feel better". I am a very lucky girl to have so many good people taking care of me! But now the flu can LEAVE!!

Wednesday, January 1, 2014

2014

2014...wow. It seems that each year just goes faster than the year before. I have spent the last 40 minutes going through my blog for the last year. I'm disappointed that I only have 38 posts to show for 2013. Usually I have a little over 100. So last 3 I put out 3 new years resolutions and was able to keep two, so I thought I would try 3 again this year.

1. Start letting work things stay at work and work no more than 10 hours a day.

2. Get Colin and my health under control. We have both had major health issues and this is the year to find a way with living with our illnesses and how to keep us the best we can be.

3. Make time for this blog. I miss reading about the small things that go on in our life. I want to have a place to look back and see the joy my kids and family have brought me.

I hope everyone has a great 2014!